Mailing Forum and Digest

My mailing list offers a place for correspondence regarding Factor V Leiden and clotting (thrombophilia) issues. There are two ways to receive the list. If you join the regular mailing list you will receive individual emails. If you join the digest, you will receive one email a day. It's a daily summary of all the individual emails.

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In order to participate in the mailing list discussions, you need to subscribe. The member list is kept confidential by boygenius.com. The email names and addresses will never be given to anyone. You can leave anonymous messages if you wish by sending your message to a special address. On normal messages, your email address will appear on the message as the sender. Currently there are over 1300 people on our mailing list from all over the world. We are an international group! Anyone can join, you don't have to have thrombophilia to discuss and read about it.

Some of the topics discussed lately have been:

Alternative anticoagulants
What types of questions to ask doctors if you have just found out you have FVL.
FVL and homeocystiene Levels-If you have fvl - have the homeocystiene test. The combination of these two can increase your chances to clot.
Side effects of taking coumadin®
Travel and how to prevent DVT's
Pregnancy issues with blood thinners
Geneaology and Factor V Leiden
Coumadin vs. injectable blood thinners vs. aspirin for thinning the blood
Compression Stockings to help with bad circulation after a DVT
Medical Alert Jewelry to inform others if you cannot in an emergency
Needle talk-how to keep your veins from getting too bruised
Options for removing bad veins after a DVT
Having children tested or not
Herbal options instead of anticoagulants and herbal options that can affect your INR
Hormone replacement therapy -pros and cons.
How to obtain your medical records.

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