April
In 1974 while still in grad school, I work up one morning feeling
really weird, nothing was working right so I went back to bed. I
was a married 28 year old, non-smoking, normal weight female that
did happen to take birth control pills.
My husband, an internal
medicine resident, came home and found me totally not right, he had
me admitted to the hospital immediately and I was diagnosed with
what they called a "mini-stroke". Treated with heparin and
hospitalized for a week and all seemed fine, except for normal
healthy 28 year olds should not be having strokes.
I returned to
school and graduated and we went on with our lives until 1983 when
the week after returning from a business trip to Germany, I woke up
with what I thought was a strained muscle in my left calf, as the
week progressed the leg continued to get more and more painful,
until I couldn't get out of bed.
My husband again took a look, but
did not suspect a clot until he compared my left leg to the right.
Off to the hospital I went, this time for two weeks on heparin. The
clot was attributed to the flight, I was released on Coumadin for
the next 3 months, all seemed fine.
This type of event continued
for several more incidents over the next 10 years, typically after a
long flight, before a new doctor decided to have a hematologist look
at me. At last a diagnosis: Factor V Leiden. After 25 years of clots
and hospitalizations.
After developing a pulmonary embolism in
1995, it was decided that I would remain on maintenance Coumadin for
the remainder of my life.
At 63 now I still work and travel extensively. I have my own monitor and am
able to keep my PT and INR regulated, and it helps when your husband is an
MD. We never had any children, but I feel able to live a full and unrestricted
life.
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